IDefine Europe

Name: IDefine Europe - AI Visibility Score
Creator: Engagemii
Published: 2026-06-07T13:15:26.486Z
License: https://creativecommons.org/licenses/by/4.0/

Unclaimed

AEO Score: 3/10

Monitoring for AI engine activity

In the Engagemii AEO index

idefine-europe.org

What this score means

Your AEO score measures whether AI search engines (ChatGPT, Claude, Perplexity, Gemini) can actually read your site and cite it in answers. Two-thirds of websites are invisible to them. IDefine Europe just got measured.

3/10 means IDefine Europe is currently invisible to AI search. Most AI assistants will not cite your brand when asked about your category. Claiming and applying the fixes below is the fastest way to change that.

About IDefine Europe

DONATE FOUNDATION ACTIVITIES DATA SCIENCE & AI ADVOCACY LEARN & TRAIN KLEEFSTRA SYNDROME NEWS & EVENTS Select Page There are more than 7,000 rare diseases, affecting a total of more than 400 million people in the world (30 million people in the EU).

Key Topics

There are more than 7,000 rare diseases, affecting a total of more than 400 million people in the world (30 million people in the EU). We are IDefine Europe, Foundation for the Advanced Treatment of Rare Genetic Diseases, an NGO based in Slovenia, Central Europe. The foundation is dedicated to advocacy and research activities of rare diseases.

The field of rare diseases is very complex, encompassing a variety of disciplines, that is why we are carrying out different activities. Access to data is crucial to understanding rare diseases and re-use of different data for research purposes can lead to important discoveries. Together we can gain new insights about rare diseases, building community and resources that lead to better care and life-changing treatments.

Our initial focus is on Kleefstra syndrome, a rare neurodevelopmental disorder.