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AI Visibility Scorecard
FIRST - Foundation for Ichthyosis & Related Skin Types, Inc.
firstskinfoundation.org · non-profit organization management
Somewhat visible. AI bots can read FIRST - Foundation for Ichthyosis & Related Skin Types, Inc., but it is missing the structured signals that push citation rate above competitors.
AI engines read this profile 3 times
ChatGPT · Claude
#13,088 of 620,160 in Nonprofits for AI visibility
6.5
/10
AEO Score
About FIRST - Foundation for Ichthyosis & Related Skin Types, Inc.
from our crawl and measurement
FIRST describes itself simply: "FIRST is the world's leading nonprofit for people affected by ichthyosis. Find support, expert resources, research, and community, all in one place." Its AI visibility score is 6.5 out of 10: the engines can find it, but they do not have much to hold on to.
On its own pages the site does well on a clear heading structure, a clearly stated business identity, crawler access and the files AI engines look for and sitemaps and entity links AI can follow. It is passable on some structured data. What holds it back is credibility markers like credentials or reviews.
Off the page, other sites link to it. There is some, but not much, sign that the domain is only lightly established and it barely surfaces on Reddit. Beyond that, AI engines do not yet recognise it as a distinct business, there is no press coverage to draw on and nobody is discussing it where AI engines look. None of that can be fixed on the page: it has to be earned.
AI crawlers have visited 3 times in our tracking, including GPTBot (ChatGPT) and ClaudeBot (Anthropic). It does link out to several social profiles, which helps engines tie the brand together. The business dates to 1981.
The 6 signals AI reads
Higher is better · 0-10
Structured Data
5
Organization / LocalBusiness JSON-LD that AI can read.
Content Structure
8
Clear headings and answer-style content.
Entity Clarity
9
How clearly your brand identity reads to AI.
E-E-A-T Signals
Experience, Expertise, Authority, Trust
4
Experience, Expertise, Authority, Trust markers.
Technical AEO
7
robots.txt, llms.txt, and AI-bot crawl access.
AI Discoverability
7
Sitemaps and entity links AI can follow.
Off-page authority
How the web signals your brand to AI
Backlinks
10
Inbound links from other sites.
Domain Trust
4
Established authority for your domain.
Entity Presence
0
Not in AI knowledge graphs yet.
News Mentions
0
No press coverage found yet.
Community
0
No community discussion yet.
1
Reddit mentions and discussion.
What this score means
Your AEO score measures whether AI search engines - ChatGPT, Claude, Perplexity, Gemini - can actually read your site and cite it in answers. Roughly two-thirds of sites are invisible to them. At 6.5/10, FIRST - Foundation for Ichthyosis & Related Skin Types, Inc. has a working base to build on - fixable, and the signals above are where to start.
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The exact fixes for FIRST - Foundation for Ichthyosis & Related Skin Types, Inc.
Which AI engines already crawl you
Weekly ChatGPT & Claude citation tracking
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Source & Attribution
Scored by Engagemii on August 1, 2026. Methodology: engagemii.com/aeo/methodology
Source URL: https://engagemii.com/aeo/brands/firstskinfoundation-org
Cite this score: Engagemii (2026). "AEO Score for FIRST - Foundation for Ichthyosis & Related Skin Types, Inc.." Retrieved from https://engagemii.com/aeo/brands/firstskinfoundation-org
Licensed under CC BY 4.0. You may reuse this data with attribution: a visible link to engagemii.com.
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